The Journey Begins


  1. Hello, I’m not super tech savvy, so first, please forgive me if I haven’t found the best place on your website to comment.
    It is very likely that the cause of your AVM’s is a disease called HHT (Hereditary Hemorrhagic Telangiectasia). I urge you and others who have had a brain aneurysm to please to visit This non-profit was founded by people suffering from AVM’s. We are desperately trying to raise awareness because HHT is less rare than the medical community had once thought and it is hard to diagnose because the symptoms often don’t present until it is too late and someone has a stroke. It is so disheartening to see so many sufferers of brain aneurysms that have not yet heard of HHT. Especially because it runs in families and these strokes can be prevented if you are diagnosed and get treatment!!! Seriously, please check out the site, if you have had an aneurysm from an AVM it is very likely HHT is the cause, and that someone else in your family could be spared having a stroke from it; is on the path to curing this “silent” terrible disease, as well as offering top notch info and advice.

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